Texas QB Sam Ehlinger Joins Fight Against Batten Disease

Four years ago this week we wrote about how Longhorns were teaming up with a midnight run to raise money for Beyond Batten Foundation. This week, Texas quarterback Sam Ehlinger joined the race to fund the cure for Batten, a rare neurological disease that causes blindness, seizures, and eventually, death.

In a video released today, Ehlinger appears with 12-year-old Garland Benson, whose sister, Christiane is afflicted with Batten. Garland has already raised $370,000 toward funding the cure, which he says has been found. Garland’s “Be a Hero” campaign looks to raise that number to $1 million, and he enlists Ehlinger to help get 100,000 people donate $10 each, by texting HERO to 501501. The overall goal by the Beyond Batten Foundation, which was founded in 2008 by Garland and Christiane’s parents when Christiane was five, is $6 million.

The foundation is pursuing FDA approval for clinical trials, from which research could help slow the Batten’s progress, buying some time for Christiane as she fights for her life.

 
 
 

No comments

Be the first one to leave a comment.

Post a Comment


 

 
July | August 2018
Antone’s Blues Brunch Banner Driskill_300x250
McCombs DeClutter
LBJ
you belong here texas exes life membership
 
 
Menu